Joint pain from 6-mp
Question:
I have been on a week and feel like I have done a round with a heavy weight boxer. I ache all over like flu but my back is the worst – feels like it is breaking! Thanks goodness for your positive posts Christine – to make me look ahead to feeling better 
Lesley I too had terrible, debilitating joint pain and swelling; only relieved by pred. But – the good news is, that since going on 6-MP, the pain and swelling has lessened tremendously. So much, that I haven’t had to see my rheumatologist in months! Christine CD > > I’m glad you were able to reduce your joint pain by switching to Imuran. > As I said I had my joint pain long before I was > > on 6-MP. In fact the pain has slowly diminished since I started 6-MP. > > If the joint pain isn’t caused by 6MP directly, then it should diminish > because 6MP is used to treat arthritis. > > >
Response:
I really empathise – I worked at home doing reports on my PC today with a hot water bottle strapped to the back rest – total bliss <g> I am finding the hottie and wheat bags a real help – just lucky I am in the middle of winter down under I used to find sleeping with a pillow between my legs good when I was pregnant so i might give it ago again – thanks for the tip Rgds Lesley I have felt that way in the last month… Your not alone!!! General ill feeling… Ache all over like the flu… Joint pain isn’t too bad…Severe pain in my back…I have to sleep with a pillow between my legs on my side.. That is the only way my stomach and back feel 1/2 way decent… I started the remicade and am feeling a bit better! Take care, Marlena
>I have been on a week and feel like I have done a round with a heavy weight boxer. I ache all over like flu but my back is the worst – feels like it is breaking! Thanks goodness for your positive posts Christine – to make me look ahead to feeling better > >Lesley > I too had terrible, debilitating joint pain and swelling; only relieved by > pred. But – the good news is, that since going on 6-MP, the pain and > swelling has lessened tremendously. So much, that I haven’t had to see my > rheumatologist in months! > Christine CD > > > I’m glad you were able to reduce your joint pain by switching to Imuran. > > As I said I had my joint pain long before I was > > > on 6-MP. In fact the pain has slowly diminished since I started 6-MP. > > > > If the joint pain isn’t caused by 6MP directly, then it should diminish > > because 6MP is used to treat arthritis. > > > > > > >
Response:
I have felt that way in the last month… Your not alone!!! General ill feeling… Ache all over like the flu… Joint pain isn’t too bad…Severe pain in my back…I have to sleep with a pillow between my legs on my side.. That is the only way my stomach and back feel 1/2 way decent… I started the remicade and am feeling a bit better! Take care, Marlena – Hide quoted text — Show quoted text – >I have been on a week and feel like I have done a round with a heavy weight boxer. I ache all over like flu but my back is the worst – feels like it is breaking! Thanks goodness for your positive posts Christine – to make me look ahead to feeling better >Lesley > I too had terrible, debilitating joint pain and swelling; only relieved by > pred. But – the good news is, that since going on 6-MP, the pain and > swelling has lessened tremendously. So much, that I haven’t had to see my > rheumatologist in months! > Christine CD > > > I’m glad you were able to reduce your joint pain by switching to Imuran. > > As I said I had my joint pain long before I was > > > on 6-MP. In fact the pain has slowly diminished since I started 6-MP. > > If the joint pain isn’t caused by 6MP directly, then it should diminish > > because 6MP is used to treat arthritis.
Response:
I too had terrible, debilitating joint pain and swelling; only relieved by pred. But – the good news is, that since going on 6-MP, the pain and swelling has lessened tremendously. So much, that I haven’t had to see my rheumatologist in months! Christine CD
– Hide quoted text — Show quoted text -> I’m glad you were able to reduce your joint pain by switching to Imuran. > As I said I had my joint pain long before I was > on 6-MP. In fact the pain has slowly diminished since I started 6-MP. > If the joint pain isn’t caused by 6MP directly, then it should diminish > because 6MP is used to treat arthritis.
Response:
Have you thought about switching to Imuran? My joint pain went almost away after switching… But, again, this is me and everyone reacts different toward medications. – Hide quoted text — Show quoted text – >FM, >Your joint pain and stiffness sounds very similar to mine. I have been on 6-MP for my UC for about 1 year but I don’t >think my meds had anything to do with it. I had the joint pain well before I was on 6-MP. The only thing that helped it >was 20 mg/day or more of prednisone. >– >Paul >Visit our photo albums at http://www.laflammefamily.ca >To reply, replace "deadspam.com" with "laflammefamily.ca"
Response:
I’m glad you were able to reduce your joint pain by switching to Imuran. As I said I had my joint pain long before I was on 6-MP. In fact the pain has slowly diminished since I started 6-MP. — Paul Visit our photo albums at http://www.laflammefamily.ca To reply, replace "deadspam.com" with "laflammefamily.ca" — – Hide quoted text — Show quoted text – > Have you thought about switching to Imuran? My joint pain went almost > away after switching… But, again, this is me and everyone reacts > different toward medications. >FM, >Your joint pain and stiffness sounds very similar to mine. I have been on 6-MP for my UC for about 1 year but I don’t >think my meds had anything to do with it. I had the joint pain well before I was on 6-MP. The only thing that helped it >was 20 mg/day or more of prednisone. >– >Paul >Visit our photo albums at http://www.laflammefamily.ca >To reply, replace "deadspam.com" with "laflammefamily.ca"
Response:
> I’m glad you were able to reduce your joint pain by switching to Imuran.
As I said I had my joint pain long before I was > on 6-MP. In fact the pain has slowly diminished since I started 6-MP.
If the joint pain isn’t caused by 6MP directly, then it should diminish because 6MP is used to treat arthritis.
Response:
FM, Your joint pain and stiffness sounds very similar to mine. I have been on 6-MP for my UC for about 1 year but I don’t think my meds had anything to do with it. I had the joint pain well before I was on 6-MP. The only thing that helped it was 20 mg/day or more of prednisone. — Paul Visit our photo albums at http://www.laflammefamily.ca To reply, replace "deadspam.com" with "laflammefamily.ca" — – Hide quoted text — Show quoted text – > I too have joint pain after a bad initial attack of UC and coming off > Prednisone. I am currently on 6MP at 75mg per day. The joint stiffness > (sometimes pain) is the worst after not moving for a while i.e. sitting or > standing. I tend to hobble for the first few minutes but then I build up > speed and flexibility. I view the stiffness as something I can live with vs > the UC attacks, but if it were to get worse I would push for a change in > meds. > I would definitely consult your GI about it, especially after the other > posts warning of shortness of breath. (I haven’t had any such symptom.) > Best wishes, > FM > Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
If your doctor doesn’t agree that the 6MP is causing it then your doctor isn’t very familiar with 6MP. It’s a common sign of a reaction. Take it very seriously because you could have shortness of breath next and it can come sudden and be very serious. When I started 6MP, aftering having bad reactions to Imuran, my doctor insisted I stay in the hospital for 24 hours to make sure I didn’t have a reaction. SO it’s very serious. I had sore knees a day or two after starting both 6MP & Imuran. Michael
– Hide quoted text — Show quoted text -> Thanks for the responses. > Actually I did some more reading of old posts and found joint pain can come > from 6-mp. And, Medline drug database lists it as a less common symptom, but > in the case of joint pain, contact doc immediately. > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html > Even though the benefits come after a few months, side effect can come > anytime, I guess that’s why they monitor you closely at the beginning. > My dr. asked other GIs and rhemetologists and disagrees that it can be a > side effect of the 6-mp. > I can’t believe this. Not just soreness. It feels like my leg/hip is broken. > And I went through the exact same thing last week with the other hip. I was > just finally walking normally yesterday when, bam, the other side. > I realize joint pain can come from IBD but I’ve never experienced it and > I’ve had some really bad flares. After IV steriods, I’ve had the soreness > but not sharp pain like this. > Anyway, if you did attribute joint pain to 6-mp, how long after starting it > did it come? > Also, I started Lexapro, and antidepressant, two weeks ago and wondering if > it is a bad mix. > Just surprised at how sudden and severe, > Tim > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
I too have joint pain after a bad initial attack of UC and coming off Prednisone. I am currently on 6MP at 75mg per day. The joint stiffness (sometimes pain) is the worst after not moving for a while i.e. sitting or standing. I tend to hobble for the first few minutes but then I build up speed and flexibility. I view the stiffness as something I can live with vs the UC attacks, but if it were to get worse I would push for a change in meds. I would definitely consult your GI about it, especially after the other posts warning of shortness of breath. (I haven’t had any such symptom.) Best wishes, FM
– Hide quoted text — Show quoted text -> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
Severe joint pain is a serious sign of a reaction to the 6MP. You should confirm with your doctor but I believe you should stop it immediately. call your doctor, don’t wait for the appointment. Imuran caused me such joint pain I had trouble walking, getting out of bed, etc. My knees hurt so bad. 6MP gave me aching knees but not as bad as Imuran, but 6MP also gave me shortness of breath which is another serious indicator of a reaction.
– Hide quoted text — Show quoted text -> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
You need something to combat the inflammation. Talk with your GI about the Cox II inhibitors such as Vioxx or Celelbrex. Pain control will not solve the problem, just mask it. mgbio
Response:
> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
hi tim i have been on 6mp for a little over a year..no joint pain from it..tho i have had joint pain from ibd forever…actually its gotten slightly better on the 6mp..remember that joint pain is an issue with ibd anyway…not for everyone and not all the time..but quite common…i take relafen for it..it helps quite a bit.. good luck..annie
Response:
I have on aza in the same family of drugs – horrendous joint pain now I am this revolting drug. Can hardly grip anything some days and all my Gp gives me is panadol with codeine to take the ‘edge’ off! Never had any kind of joint trouble rpior to starting these drugs. I suspect i will not be able to get to the dose for weight to be beneficial as I have other problems taking it. The drug appears to be worse than the disease. Lesley Hello everyone, Shoot, I can’t walk. I have an appointment but in the mean time… Been on 6-mp for a couple months. Has anyone had the severe joint pain from it? What happened, did you have to stop taking it etc. Thx, Tim
Response:
>Hi, I get really bad joint pain with my Crohns, to the point that I limp and >wake up at night.
Does anyone have joint pain a long time after flare-ups? I haven’t had a flare-up in a long time (I have an ileostomy), but I have lots of joint pain in my feet and knees. Maybe just plain old arthritis already (I’m 36), but I wonder sometimes if it has to do with my crohn’s. Kristen
Response:
Hi Tim, We must be on the same wavelength <G>. My pain didn’t come in attacks but rather was pretty constant for a period of time. I noticed it most when I’d been in one position for any length of time and then needed to move. Yes, I had IV steroids both times I was hospitalized. I hadn’t heard of it leading to arthritis. I know long term use can lead to osteoporosis but it is a nasty drug so who knows. I think they base thier "knowing" if RA comes from IBD just based on both being autoimmune diseases and looking at the data of both being present in enough IBD patients. HTH. Good luck! mgbio – Hide quoted text — Show quoted text – > Thanks mgbio, always on top of my questions. Just saw a vioxx ad on TV and > thinking that’s what I want. The "attack" this morning has subsided a bit > (just as last week’s attack did after a day or so) so I’m at least gettin > around now. see dr. Wed. BTW, have you had IV steriods? I remember reading > on here awhile back that once you’ve had that, you are doomed to get > arthritis awhile later. But if it comes directly from IBD, don’t know how > they’d know it. > I experienced joint pain which was attributed to arthritis, common among > IBD’ers. My GI put me on a low dose of Vioxx, 12.5 mg/day, and I was > fine. After time, the soreness has stopped and I stopped taking the > Vioxx. > mgbio > > Thanks for the responses. > > Actually I did some more reading of old posts and found joint pain can > come > > from 6-mp. And, Medline drug database lists it as a less common symptom, > but > > in the case of joint pain, contact doc immediately. > > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html > > Even though the benefits come after a few months, side effect can come > > anytime, I guess that’s why they monitor you closely at the beginning. > > My dr. asked other GIs and rhemetologists and disagrees that it can be a > > side effect of the 6-mp. > > I can’t believe this. Not just soreness. It feels like my leg/hip is > broken. > > And I went through the exact same thing last week with the other hip. I > was > > just finally walking normally yesterday when, bam, the other side. > > I realize joint pain can come from IBD but I’ve never experienced it and > > I’ve had some really bad flares. After IV steriods, I’ve had the > soreness > > but not sharp pain like this. > > Anyway, if you did attribute joint pain to 6-mp, how long after starting > it > > did it come? > > Also, I started Lexapro, and antidepressant, two weeks ago and wondering > if > > it is a bad mix. > > Just surprised at how sudden and severe, > > Tim > > > Shoot, I can’t walk. > > > I have an appointment but in the mean time… > > > Been on 6-mp for a couple months. > > > Has anyone had the severe joint pain from it? What happened, did you > > > have to stop taking it etc. > > > Thx, Tim
Response:
I had severe joint pain as well… I switched from 6-mp to Imuran and have very little joint pain…. Take care! Marlena – Hide quoted text — Show quoted text ->Hello everyone, >Shoot, I can’t walk. >I have an appointment but in the mean time… >Been on 6-mp for a couple months. >Has anyone had the severe joint pain from it? What happened, did you >have to stop taking it etc. >Thx, Tim
Response:
You might want to check with your pharmacist. Debs – Hide quoted text — Show quoted text – > Thanks for the responses. > Actually I did some more reading of old posts and found joint pain can come > from 6-mp. And, Medline drug database lists it as a less common symptom, but > in the case of joint pain, contact doc immediately. > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html > Even though the benefits come after a few months, side effect can come > anytime, I guess that’s why they monitor you closely at the beginning. > My dr. asked other GIs and rhemetologists and disagrees that it can be a > side effect of the 6-mp. > I can’t believe this. Not just soreness. It feels like my leg/hip is broken. > And I went through the exact same thing last week with the other hip. I was > just finally walking normally yesterday when, bam, the other side. > I realize joint pain can come from IBD but I’ve never experienced it and > I’ve had some really bad flares. After IV steriods, I’ve had the soreness > but not sharp pain like this. > Anyway, if you did attribute joint pain to 6-mp, how long after starting it > did it come? > Also, I started Lexapro, and antidepressant, two weeks ago and wondering if > it is a bad mix. > Just surprised at how sudden and severe, > Tim > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
I experienced joint pain which was attributed to arthritis, common among IBD’ers. My GI put me on a low dose of Vioxx, 12.5 mg/day, and I was fine. After time, the soreness has stopped and I stopped taking the Vioxx. mgbio – Hide quoted text — Show quoted text – > Thanks for the responses. > Actually I did some more reading of old posts and found joint pain can come > from 6-mp. And, Medline drug database lists it as a less common symptom, but > in the case of joint pain, contact doc immediately. > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html > Even though the benefits come after a few months, side effect can come > anytime, I guess that’s why they monitor you closely at the beginning. > My dr. asked other GIs and rhemetologists and disagrees that it can be a > side effect of the 6-mp. > I can’t believe this. Not just soreness. It feels like my leg/hip is broken. > And I went through the exact same thing last week with the other hip. I was > just finally walking normally yesterday when, bam, the other side. > I realize joint pain can come from IBD but I’ve never experienced it and > I’ve had some really bad flares. After IV steriods, I’ve had the soreness > but not sharp pain like this. > Anyway, if you did attribute joint pain to 6-mp, how long after starting it > did it come? > Also, I started Lexapro, and antidepressant, two weeks ago and wondering if > it is a bad mix. > Just surprised at how sudden and severe, > Tim > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
Thanks mgbio, always on top of my questions. Just saw a vioxx ad on TV and thinking that’s what I want. The "attack" this morning has subsided a bit (just as last week’s attack did after a day or so) so I’m at least gettin around now. see dr. Wed. BTW, have you had IV steriods? I remember reading on here awhile back that once you’ve had that, you are doomed to get arthritis awhile later. But if it comes directly from IBD, don’t know how they’d know it.
– Hide quoted text — Show quoted text -> I experienced joint pain which was attributed to arthritis, common among > IBD’ers. My GI put me on a low dose of Vioxx, 12.5 mg/day, and I was > fine. After time, the soreness has stopped and I stopped taking the > Vioxx. > mgbio > Thanks for the responses. > Actually I did some more reading of old posts and found joint pain can come > from 6-mp. And, Medline drug database lists it as a less common symptom, but > in the case of joint pain, contact doc immediately. > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html > Even though the benefits come after a few months, side effect can come > anytime, I guess that’s why they monitor you closely at the beginning. > My dr. asked other GIs and rhemetologists and disagrees that it can be a > side effect of the 6-mp. > I can’t believe this. Not just soreness. It feels like my leg/hip is broken. > And I went through the exact same thing last week with the other hip. I was > just finally walking normally yesterday when, bam, the other side. > I realize joint pain can come from IBD but I’ve never experienced it and > I’ve had some really bad flares. After IV steriods, I’ve had the soreness > but not sharp pain like this. > Anyway, if you did attribute joint pain to 6-mp, how long after starting it > did it come? > Also, I started Lexapro, and antidepressant, two weeks ago and wondering if > it is a bad mix. > Just surprised at how sudden and severe, > Tim > > Shoot, I can’t walk. > > I have an appointment but in the mean time… > > Been on 6-mp for a couple months. > > Has anyone had the severe joint pain from it? What happened, did you > > have to stop taking it etc. > > Thx, Tim
Response:
my joint pain came from the attacks ( mini and large) I also had severe pain from the prednisone. are you haveing any other side effects. i have been on 6mp for year and ahalf and the only thing i feel is exhaustion, and hairloss(mild) 2 months isntlong enough to feel the effects of 6mp since they have to determine your dosage and such and it can take 3-9 months to feel the real benefit from the drug. are you having an episode and mahybe the joint pain is simply associated with the crohns?
– Hide quoted text — Show quoted text -> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
Hi, I get really bad joint pain with my Crohns, to the point that I limp and wake up at night. Mel
– Hide quoted text — Show quoted text -> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
Thanks for the responses. Actually I did some more reading of old posts and found joint pain can come from 6-mp. And, Medline drug database lists it as a less common symptom, but in the case of joint pain, contact doc immediately. http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682653.html Even though the benefits come after a few months, side effect can come anytime, I guess that’s why they monitor you closely at the beginning. My dr. asked other GIs and rhemetologists and disagrees that it can be a side effect of the 6-mp. I can’t believe this. Not just soreness. It feels like my leg/hip is broken. And I went through the exact same thing last week with the other hip. I was just finally walking normally yesterday when, bam, the other side. I realize joint pain can come from IBD but I’ve never experienced it and I’ve had some really bad flares. After IV steriods, I’ve had the soreness but not sharp pain like this. Anyway, if you did attribute joint pain to 6-mp, how long after starting it did it come? Also, I started Lexapro, and antidepressant, two weeks ago and wondering if it is a bad mix. Just surprised at how sudden and severe, Tim – Hide quoted text — Show quoted text – > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
Response:
Hello everyone, Shoot, I can’t walk. I have an appointment but in the mean time… Been on 6-mp for a couple months. Has anyone had the severe joint pain from it? What happened, did you have to stop taking it etc. Thx, Tim
Response:
Tim, I’ve never had any joint pain from 6mp and I’ve been on it for over 4 yrs. IBD can cause joint pain. Talk to your Dr. about it. You shouldn’t have to suffer from pain. Sherry
> Hello everyone, > Shoot, I can’t walk. > I have an appointment but in the mean time… > Been on 6-mp for a couple months. > Has anyone had the severe joint pain from it? What happened, did you > have to stop taking it etc. > Thx, Tim
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