lost my knees

Question:

Paula, I seem to have 2 sets, you’re welcome to a pair. Cut price, ofcourse. Mel

– Hide quoted text — Show quoted text -> If anyone has seen any knees floating around, they are mine > Trust me, when someone is as heavy as I am you just don’t look at your body; > normally. I knew things were wrong having gained a lot of weight since on the > entocort but refused to look. However, yesterday I got huge itchy red welt on my > legs so needed to put cream for the itching on. I then realized that my knees > had disappeared. Nowhere to be found, so if someone saw some….  GI can go > you know where, I am stopping the entocort. This must be real bad for my > health. > Oh, of course the ankles have been sort of lost for a while already but they > seem to be popping in many mornings for a little while. > Now I wonder what will happen when one retains ( to much) water around the > heart, or…..brain? ( let the jokes begin). > Anyway, anyone has any advice for the now?? Please don’t say talk with your > Doctor as my GI will not talk with me. My body’s mechanism made his ego very > upset ( he was wrong) and he takes it out on me. > Oh, I always sleep with my legs up; the reason my ankles show themselves in the > a.m. > Thanks in advance

Response:

Sorry got milk on the brain I think!  I meant the headaches.  UM MOM Susan

– Hide quoted text — Show quoted text -> Paula the milk could be a side effect of the pills you pop!  Even > supplements can cause this so you might want to check that.  As for the milk > thissle I haven’t tried it but I would recommend to see a kidney dr to make > sure everything there is ok.  The tests are easy and you need to make sure > no problems there as I just had a friend die of kidney failure due to a > different disease other than the IBD.  UM MOM Susan > Thanks Susan > Not only did I just reduce the entocort to start weaning myself of it, but > I > promised my husband to call my family doctor tomorrow. Hubby is rather > concerned > but the Gastro will not see me until my appointment in a good 2 weeks. > Actually I was thinking brain as I now have headaches which I normally > never > have; well seldom anyway, maybe once every 3 years or so and I now am > having one > for over a week already. > Never thought of kidney but….. this guy had me quit my milk thistle drop > which > was working fabulous for the kidneys and then he rx this harsh on the > kidneys > drugs. Great call Susan, back to the milk thistle! > > Paul, yes you can get edema in the heart, brain really you can can it in > the > > internal organs.  I was sent to a kidney dr to role this out and then to > a > > vascular one.  When the edema starts I take a water pill and the minimum > of > > two pillows so the feet and knees are above the heart for draining. UM > MOM

Response:

Paula the milk could be a side effect of the pills you pop!  Even supplements can cause this so you might want to check that.  As for the milk thissle I haven’t tried it but I would recommend to see a kidney dr to make sure everything there is ok.  The tests are easy and you need to make sure no problems there as I just had a friend die of kidney failure due to a different disease other than the IBD.  UM MOM Susan

– Hide quoted text — Show quoted text -> Thanks Susan > Not only did I just reduce the entocort to start weaning myself of it, but I > promised my husband to call my family doctor tomorrow. Hubby is rather concerned > but the Gastro will not see me until my appointment in a good 2 weeks. > Actually I was thinking brain as I now have headaches which I normally never > have; well seldom anyway, maybe once every 3 years or so and I now am having one > for over a week already. > Never thought of kidney but….. this guy had me quit my milk thistle drop which > was working fabulous for the kidneys and then he rx this harsh on the kidneys > drugs. Great call Susan, back to the milk thistle! > Paul, yes you can get edema in the heart, brain really you can can it in the > internal organs.  I was sent to a kidney dr to role this out and then to a > vascular one.  When the edema starts I take a water pill and the minimum of > two pillows so the feet and knees are above the heart for draining.  UM

MOM

Response:

Paula – this is strange – I had headaches the whole time I was on endocort!!  Shoot, I had so many problems on it that my dr just changed me back to prednisone.  Headaches are something I very rarely have.   Hugs,  Linda – Hide quoted text — Show quoted text – > Thanks Susan > Not only did I just reduce the entocort to start weaning myself of it, but I > promised my husband to call my family doctor tomorrow. Hubby is rather concerned > but the Gastro will not see me until my appointment in a good 2 weeks. > Actually I was thinking brain as I now have headaches which I normally never > have; well seldom anyway, maybe once every 3 years or so and I now am having one > for over a week already. > Never thought of kidney but….. this guy had me quit my milk thistle drop which > was working fabulous for the kidneys and then he rx this harsh on the kidneys > drugs. Great call Susan, back to the milk thistle! > Paul, yes you can get edema in the heart, brain really you can can it in the > internal organs.  I was sent to a kidney dr to role this out and then to a > vascular one.  When the edema starts I take a water pill and the minimum of > two pillows so the feet and knees are above the heart for draining.  UM MOM

Response:

Hugs,  Linda – Hide quoted text — Show quoted text – > Hi Vivian > Thanks for the advice. Problem is I have never been able to stand cold nor hot. > Once in hospital I had everyone in a big frenzy. Was after I gave birth. I > needed a blood transfusion and just after they gave me the 2nd unit a pushy > nurse decided, against my wishes, that "of course" I needed an ice bag for my > stitches. unable to move, she put it on me and I immediately started shivering, > then shaking uncontrollable, teeth indeed ?? ( making that noise when cold), > looking like I had a seizure. They taught I had gotten the wrong blood! Can you > image the panic that ensued?? All because of an ice bag > I am the same with food and drink. It can get here 37C ( about 100F) and I will > not have a drink from the fridge, Can’t handle that cold; same with real heat. > I am sure the water retention it due to the entocort. Would that still mean it > is inflamed you think? > Hi Paula, > Usually one treats swollen feet and legs > with ice. As it is a problem of blood circulation, you should try to improve the > blood circulation. > This can be done with ice and feet baths. > You may put salt into the water or apple > vinegar. > If you suspect inflammation on the knees > and the feet, then the most natural > anti-inflammatory is to alternate > hot water and ice. > Put the concerned parts of the body three minutes in hot water (if possible > 40

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