hello, need your help please
Question:
Hey, thanks for all your responses. I’ve decided to do the mtx, haven’t started yet though
Response:
Good luck Donna! Please let us know how the treatment goes for you. 
mgbio – Hide quoted text — Show quoted text – > Hey, thanks for all your responses. I’ve decided to do the mtx, haven’t > started yet though
Response:
donna~ glad to hear you felt informed enuf to decide to try the mtx.. i am hoping with you it works well & you are feeling better. be patient,it may take awhile take care carol
Response:
I was on mtx for 4-5 weeks by weekly injection. Then my liver tests came back abnormal and a liver biopsy came baack and it was definetly abnormal so my GI had to stop it. Yhey started it in the hospital and the pharmacy would prepare the syringes down stairs and then send them up to the ward, one at a time in yellow bucket with huge biohazard symbols on them. I hope that you have good luck with it, my mtx experience was in the pre-remicade era, which I have yet to try. Good luck may you find the magic potion that works – Paul – Hide quoted text — Show quoted text – > Hi Rebecca, > I definitely have to keep something in my stomach, otherwise it is > worse! It can be hard to make yourself eat when your stomach doesn’t > feel good, but I force myself because I know it will help. I must > admit I have been feeling better this week since I reduced my dose to > 15mg. > I hadn’t noticed feeling better by resting, although I have been off > work and taking it easy since March anyway! I suppose a low-level > seasickness is a good way to describe how my tummy feels. I was > actually going to try taking some ginger travel sickness tablets I > have in the cupboard instead of something like maxolon, but haven’t > needed to. > Take care, > Amy. > I told the doc my nausea feels more like being seasick — if I sit > down or > rest, I feel better. I also feel better right after I eat, which is NOT > helping my diet. . . . > Does that sound like what you get? > Rebecca
Response:
Hi Rebecca, I definitely have to keep something in my stomach, otherwise it is worse! It can be hard to make yourself eat when your stomach doesn’t feel good, but I force myself because I know it will help. I must admit I have been feeling better this week since I reduced my dose to 15mg. I hadn’t noticed feeling better by resting, although I have been off work and taking it easy since March anyway! I suppose a low-level seasickness is a good way to describe how my tummy feels. I was actually going to try taking some ginger travel sickness tablets I have in the cupboard instead of something like maxolon, but haven’t needed to. Take care, Amy. – Hide quoted text — Show quoted text – > I told the doc my nausea feels more like being seasick — if I sit down or > rest, I feel better. I also feel better right after I eat, which is NOT > helping my diet. . . . > Does that sound like what you get? > Rebecca
Response:
btw my GI explained to me that the pill was a good match for me because my crohns is in the rectum and doesn’t really effect the absorbtion of the metx. for people with poor absorbtion the shot may be better because it is supposed to go directly to the blood stream and also have less side affects (?) theory anyway. side effects can be: drowziness,dizziness,nausea, stomach pain, the more serious ones are mouth sores, diarrhea,fever, fatigue,unusual bleeding, (so far sounds like a fairly accurate description of CD 
) bruising, persistant sore throat,enlarged glands/lymph nodes,chest pain,dry cough, trouble breathing, calf pain/swelling, vision changes, irregular heartbeat,,unusual bone pain, muscle weakness,mental/mood swings, seizures,temporary hair loss. i have noticed a change of mood ,more irritable now when in pain.and even less hair than the already new and improved (??) trimmer version of hair. also supposed to drink lots of water, and be careful of the sun. and never drink when facing south on tuesdays… are you still with me? carol thanks Mary!
Response:
I told the doc my nausea feels more like being seasick — if I sit down or rest, I feel better. I also feel better right after I eat, which is NOT helping my diet. . . . Does that sound like what you get? Rebecca
– Hide quoted text — Show quoted text -> Hi Donna, > I have been on mtx since late December, and I feel like it is helping > which is pretty miraculous for me as I tend to not respond well to > medication. I have been injecting 20mg every week, but last time reduced > it to 15mg because I was worried it might have been contributing to me > feeling unwell (abdo pain/nausea). I started off just having a funny > feeling in my tummy for an hour or two on the night of the injection, > but more recently have been feeling queasy (but not to the stage of > feeling like I was going to vomit). I also feel very tired the night of > the injection. As a definite positive, it cleared up my arthritis really > well > Good luck with your decision! > Amy. > Hey everyone, > Haven’t been around lately..but I need your help with a > decision I have to make. Things are still not better with > me (been 7 months now). Doc gave me a choice between mtx > and remi. I am leaning towards mtx first, but not sure. > Can you guys share your success and horror stories about > mtx??? I would really really appreciate it. Thanks > Donna
Response:
Just wondering…people in general feel as though mtx is a very harsh drug..what is it that makes it more toxic than any other drug out there. They all have their side effects Am I missing something about the mtx..why are people so scared of it?
Response:
I thought mtx was a infusion like remicade but sounds like it is a pill???? Hope it continues to work for you Carol and Rebecca without the side effects. Mary
– Hide quoted text — Show quoted text -> I’m on my 6th week of mtx right now — I’ve had a lot of trouble with nausea > for a few days after I take it, but by the end of the week (I take it on > Sundays) I feel really good. All of my joint pain is completely gone, and my > gut pain is significantly better. I am, however, really, really tired for > about 36 hours after I take it. So, I’m good half the week and bad half the > week. I’m still trying to decide if it is worth it. I do love being able to > sew and type again as I was having a lot of pain in my joints. > Good luck and let us know what you decide to do. > Rebecca > Hey everyone, > Haven’t been around lately..but I need your help with a > decision I have to make. Things are still not better with > me (been 7 months now). Doc gave me a choice between mtx > and remi. I am leaning towards mtx first, but not sure. > Can you guys share your success and horror stories about > mtx??? I would really really appreciate it. Thanks > Donna
Response:
You can take it either in pill form or as an injection. I’m on the pills. Thanks for the good thoughts. Rebecca
– Hide quoted text — Show quoted text -> I thought mtx was a infusion like remicade but sounds like it is a pill???? > Hope it continues to work for you Carol and Rebecca without the side > effects. > Mary > I’m on my 6th week of mtx right now — I’ve had a lot of trouble with > nausea > for a few days after I take it, but by the end of the week (I take it on > Sundays) I feel really good. All of my joint pain is completely gone, and > my > gut pain is significantly better. I am, however, really, really tired for > about 36 hours after I take it. So, I’m good half the week and bad half > the > week. I’m still trying to decide if it is worth it. I do love being able > to > sew and type again as I was having a lot of pain in my joints. > Good luck and let us know what you decide to do. > Rebecca > > Hey everyone, > > Haven’t been around lately..but I need your help with a > > decision I have to make. Things are still not better with > > me (been 7 months now). Doc gave me a choice between mtx > > and remi. I am leaning towards mtx first, but not sure. > > Can you guys share your success and horror stories about > > mtx??? I would really really appreciate it. Thanks > > Donna
Response:
Hi Donna, I have been on mtx since late December, and I feel like it is helping which is pretty miraculous for me as I tend to not respond well to medication. I have been injecting 20mg every week, but last time reduced it to 15mg because I was worried it might have been contributing to me feeling unwell (abdo pain/nausea). I started off just having a funny feeling in my tummy for an hour or two on the night of the injection, but more recently have been feeling queasy (but not to the stage of feeling like I was going to vomit). I also feel very tired the night of the injection. As a definite positive, it cleared up my arthritis really well Good luck with your decision! Amy. – Hide quoted text — Show quoted text – > Hey everyone, > Haven’t been around lately..but I need your help with a > decision I have to make. Things are still not better with > me (been 7 months now). Doc gave me a choice between mtx > and remi. I am leaning towards mtx first, but not sure. > Can you guys share your success and horror stories about > mtx??? I would really really appreciate it. Thanks > Donna
Response:
Hey everyone, Haven’t been around lately..but I need your help with a decision I have to make. Things are still not better with me (been 7 months now). Doc gave me a choice between mtx and remi. I am leaning towards mtx first, but not sure. Can you guys share your success and horror stories about mtx??? I would really really appreciate it. Thanks Donna
Response:
Been on remicade several months now and so far so good. GI just added Entocort to the mix for a couple of months. My Internist said I was on the strongest drug out there for Crohns. Mary
– Hide quoted text — Show quoted text -> Hey everyone, > Haven’t been around lately..but I need your help with a > decision I have to make. Things are still not better with > me (been 7 months now). Doc gave me a choice between mtx > and remi. I am leaning towards mtx first, but not sure. > Can you guys share your success and horror stories about > mtx??? I would really really appreciate it. Thanks > Donna
Response:
donna~ i am now on my 5th week of mtx. i take it orally. for me i am still waiting for clear results. i had one week that really was an improvement til PMS hit. pain for me is the worst symtom for me by far. so i am hoping still for it to kick in & work for me. my dr. is going to start the remicade process going for insurance coverage very soon. in case this doesn’t work so i won’t have to wait for longer period to begin the remicade. i get very tired and need more sleep for at least one day after taking it. i am talking need to sleep like can bearly move i am so wiped out. even that isn’t so pronounced for me now. last dose just needed 1 extra nap. sorry to hear of your flare lasting so long. take good care carol
Response:
I’m on my 6th week of mtx right now — I’ve had a lot of trouble with nausea for a few days after I take it, but by the end of the week (I take it on Sundays) I feel really good. All of my joint pain is completely gone, and my gut pain is significantly better. I am, however, really, really tired for about 36 hours after I take it. So, I’m good half the week and bad half the week. I’m still trying to decide if it is worth it. I do love being able to sew and type again as I was having a lot of pain in my joints. Good luck and let us know what you decide to do. Rebecca
– Hide quoted text — Show quoted text -> Hey everyone, > Haven’t been around lately..but I need your help with a > decision I have to make. Things are still not better with > me (been 7 months now). Doc gave me a choice between mtx > and remi. I am leaning towards mtx first, but not sure. > Can you guys share your success and horror stories about > mtx??? I would really really appreciate it. Thanks > Donna
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